Who We Are

We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. We do this as individuals, not representatives of any organization we may be associated with.

• We make ourselves available via email, phone or Zoom. 
• We are open and honest, and willing to discuss anything requested.
• We answer general questions about ALS pre-clinical and clinical research.
• We share resources from around the world that empower ALS families.
• We answer scientific questions as needed (scientists only)

• Provide personal opinions about any options available.
• Represent any one organization or group - we are a group of volunteers from various backgrounds and affiliations, with information and compassion. 
• Give any medical advice.
• Give any financial advice.
• Discuss any information that we can not confirm via legitimate scientific sources or personal experience.